Most Recent Videos
2:13ASH 2020 - Dr. Nakar and Dr. Shapiro: Treatment for patients with C-PLGD with airway obstruction and respiratory distress
2:28ASH 2020 - Dr. Nakar and Dr. Shapiro: How airway obstruction and respiratory distress can impact pediatric patients versus adult patients
2:58ASH 2020 - Dr. Nakar and Dr. Shapiro: Treatment for patients with congenital plasminogen deficiency with respiratory distress
1:50ASH 2020 - Dr. Nakar and Dr. Shapiro: The diagnosis process for patients with congenital plasminogen deficiency
1:35ASH 2020 - Dr. Nakar and Dr. Shapiro: Common manifestations of congenital plasminogen deficiency
42:41Webinar Session on Plasminogen Deficiency: Expand your knowledge (en anglais seulement)
This webinar will provide a comprehensive and timely overview on management of Plasminogen Deficiency, including strategies for coping with a chronic disease. In this webinar, you’ll learn - Causes
2:17Plasminogen Replacement Therapy for Congenital Plasminogen Deficiency (en anglais seulement)
At Prometic Life Sciences we are committed to addressing unmet medical needs in rare diseases such as Congenital Plasminogen Deficiency (PLGD).
1:31Plasminogen Deficiency Awareness Week 2018
PLGD is a rare genetic disease that causes lesions, inflammation and infection to appear on various parts of the body, including the vital organs. The effects can be devastating.
3:37Plasminogen Deficiency and its impact on family members
One of the main challenges that family members face, is dealing with the unknown. This is deeply difficult as they can be concerned about the future, and how the disease will progress.
2:49Amanda's Testimonial
Meet Amanda who’s been a caregiver for the past 2 years. Learn more about Plasminogen Deficiency Awareness Week
4:01Amy's Testimonial
Meet Amy who’s been a caregiver for the past 2 years and learn more about Plasminogen Deficiency Awareness Week. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
3:35Jessica's Testimonial
Meet Jessica who’s been a caregiver for the past 14 years and learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
2:28WISEMap for Caregivers
Learn how to better identify missing resources in your caregiving network and learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
4:17Patient Journey
Meet Sara and Gaby, who've just arrived home with newborn baby Hania and Learn more about Plasminogen Deficiency Awareness Week.
3:04Heather's Testimonial
Meet Heather, 43, how has been dealing with Plasminogen Deficiency since she was a baby. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
8:57Behind the Mystery: Plasminogen Deficiency (PLGD) (en anglais seulement)
Plasminogen Deficiency (PLGD) is an ultra-rare genetic disease that can have devastating effects on multiple organ systems throughout the body.
3:15Andrea's Testimonial (en anglais seulement)
Meet Andrea, 17, how has been dealing with Plasminogen Deficiency since the age of 3. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
5:35The Psychological Impact – Dr. Sarah Bein (en anglais seulement)
Working as a professional psychiatrist, and being a Plasminogen Deficiency patient herself, Dr. Sarah Bein is the right person to explain how difficult it can be to deal with this rare disease. Learn
0:47Treating Plasminogen Deficiency - Prometic (en anglais seulement)
Sarah Bien, MD, is a physician as well as a patient with plasminogen deficiency. In this video clip, she talks about how it is diagnosed & treated as well as her experience with past treatment options
1:50What is Plasminogen Deficiency (en anglais seulement)
Sarah Bein, MD, is a physician but also a patient with plasminogen deficiency. In this video clip, she talks about the pathophysiology and genetics of this rare condition.