Rare Disease: Plasminogen Deficiency (PLGD)
This Stream includes all Videos from our Rare Disease: Plasminogen Deficiency (PLGD) Youtube playlist
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2:13
ASH 2020 - Dr. Nakar and Dr. Shapiro: Treatment for patients with C-PLGD with airway obstruction and respiratory distress
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1:31
ASH 2020 - Dr. Nakar and Dr. Shapiro: The significance of 3 new patient cases in understanding congenital plasminogen deficiency
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2:28
ASH 2020 - Dr. Nakar and Dr. Shapiro: How airway obstruction and respiratory distress can impact pediatric patients versus adult patients
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2:58
ASH 2020 - Dr. Nakar and Dr. Shapiro: Treatment for patients with congenital plasminogen deficiency with respiratory distress
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1:50
ASH 2020 - Dr. Nakar and Dr. Shapiro: The diagnosis process for patients with congenital plasminogen deficiency
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1:35
ASH 2020 - Dr. Nakar and Dr. Shapiro: Common manifestations of congenital plasminogen deficiency
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42:41
Webinar Session on Plasminogen Deficiency: Expand your knowledge
This webinar will provide a comprehensive and timely overview on management of Plasminogen Deficiency, including strategies for coping with a chronic disease. In this webinar, you’ll learn - Causes
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2:17
Plasminogen Replacement Therapy for Congenital Plasminogen Deficiency
At Prometic Life Sciences we are committed to addressing unmet medical needs in rare diseases such as Congenital Plasminogen Deficiency (PLGD).
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1:31
Plasminogen Deficiency Awareness Week 2018
PLGD is a rare genetic disease that causes lesions, inflammation and infection to appear on various parts of the body, including the vital organs. The effects can be devastating.
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3:37
Plasminogen Deficiency and its impact on family members
One of the main challenges that family members face, is dealing with the unknown. This is deeply difficult as they can be concerned about the future, and how the disease will progress.
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2:49
Amanda's Testimonial
Meet Amanda who’s been a caregiver for the past 2 years. Learn more about Plasminogen Deficiency Awareness Week
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4:01
Amy's Testimonial
Meet Amy who’s been a caregiver for the past 2 years and learn more about Plasminogen Deficiency Awareness Week. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
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3:35
Jessica's Testimonial
Meet Jessica who’s been a caregiver for the past 14 years and learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
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2:28
WISEMap for Caregivers
Learn how to better identify missing resources in your caregiving network and learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
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4:17
Patient Journey
Meet Sara and Gaby, who've just arrived home with newborn baby Hania and Learn more about Plasminogen Deficiency Awareness Week.
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3:04
Heather's Testimonial
Meet Heather, 43, how has been dealing with Plasminogen Deficiency since she was a baby. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
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8:57
Behind the Mystery: Plasminogen Deficiency (PLGD)
Plasminogen Deficiency (PLGD) is an ultra-rare genetic disease that can have devastating effects on multiple organ systems throughout the body.
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3:15
Andrea's Testimonial
Meet Andrea, 17, how has been dealing with Plasminogen Deficiency since the age of 3. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com
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5:35
The Psychological Impact – Dr. Sarah Bein
Working as a professional psychiatrist, and being a Plasminogen Deficiency patient herself, Dr. Sarah Bein is the right person to explain how difficult it can be to deal with this rare disease. Learn
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0:47
Treating Plasminogen Deficiency - Prometic
Sarah Bien, MD, is a physician as well as a patient with plasminogen deficiency. In this video clip, she talks about how it is diagnosed & treated as well as her experience with past treatment options
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